Wednesday, November 2, 2011

Pick a topic any topic. Wigs? Haircuts? Power Port surgery? 1st Chemo?

I will begin this post going back to the weekend of 10/28.

With the Chemo I am on, I will loose my hair 2 weeks after I start it. 

Again, no body really wants this crap to happen to them, but the bigger picture is the bigger picture, I gotta live and do what I have to do. And I will probably miss the at least 3 to 4 compliments I get daily for my funky highlights, it will be ok :)  Dana Ray you have always rocked my hair!

So as always, I am wanting to make things fun and decided that an last minute plan to go on an outing to a wig shop would be just thing I needed to get started on accepting my new found baldness that will be upon me before I know it.  So off we go, Michelle, Sara K and I.

We end up at the Gallery of Wigs off of Edward's Mill Road.  You walk in and of course it's instant, ohh those are cute, eww not for me.

I would imagine that I tried on every length, every color.  I found out that I should never color my hair Platium Blond that was an awful color on me. 

Nor should I grow it out much longer than it was that day. (I cut my hair later that night) 

So a few hundred bucks later, I am the proud owner of two wigs, one is a very simple cut that we posted on FB, and the other she had to order in the "funky" colors that I wanted.  She also called that wig the cadillac of wigs, which scared me just a  bit.  But with this wig, I can flat iron it, hot roller it, and do whatever I want style wise up to 350 degrees.

So later that night, My MaMA Kathleen (she is a hairdresser) was at our neighbor's house celebrating his birthday.  I have always wanted to try a shorter hairstyle with the stack in the back.  (Remember, I have been growing my hair out for KJ and Rollin's wedding, and I was really liking how it look long, too) 
But I figure what the hay, I am going to be bald soon, Mama Kat let's go to your house and get haircuts.  So 7 of us piled into Kathleen's car and off we went.  So I am the proud owner of short hair for at least 10 days :)
I will have to say, I am dreading the growing back in stage, not sure if the pixie hair is for me....but pixie is better than nutha!   I hope I don't sound too whiny, its just my real thoughts....

Of side notes, Braxton wants me to get afro wigs.  Chase says he wants me to wear bandana's everyday because they rock and I will look cute in them.  Braeden just wants to know if I will be bald forever like Mr Geoff next door :)  

A big thank you to my neighbor Chrissy Wisler, she took some fabric I had purchased and made me some really cute bandana's.  I told her, I was going to have to buy outfits to match the fabric.  lol  Bart just groans at that statement.  But SERIOULSY, I can't be mismatching :)

So on to the not too fun stuff.
My port was on 10/31 at 7:00.  A big huge thank you to my sweet friends the Howells for getting me there. Taft got me there safely, and it confused us slightly, because for a minute we were thinking we headed to work, lol!

So things I can tell you the port.  The nursing staff were great, the not so great part for me was when the actual doctor came in, he never whet to the side of the bed where my head was turned. (they had me positioned just right, and I could not move my head.  So I have NO idea who the boy-child doctor is who did my surgery or what he even looks like. 

I hope I am not being bitchy, but seriously that would have take 3 seconds to introduce himself.  (Maybe, I am just spoiled, because when I worked in the hospital I was very much like I am outside of the hospital, personable, humorous etc.  I am also that way as a patient) 

Fast forward, this dang Power Ports HURTS for the first day, I needed to be in bed.  But Braeden knows what a big deal Halloween is around here.  We Crums and neighbors have the best time with the dressing up and decorations.  Braeden asked me every so sweetly if I would be giving out candy, and I could not disappoint that little face. The rain may have been a mixed blessing, who knows.  Donna came over and we passed out candy for almost 2 hours, when the boys got back, I was promptly sent to bed by Donna and Angie.

Next day is Tuesday the 1st my first chemo day...I will short and sweet about this. 
It was a LONNNNNG BUTTT DAYYYYY of appppppts.  I won't bore you with all the details, got there at 8:30 had muga scan (this will be my baseline picture of my heart, then we will recheck to see what chemo has done to damage it, THIS is what makes me want to cuss....is it not enough that I have cancer, but the drug you are fixing me with is going to damage my perfectly good heart.....sigggggghhhhhhh)  That's all the negative I will say, but DAMN!  
(again, sorry to all of my non-cussing friends, but I don't smoke so I need to let it out somehow)

Saw my medical oncologist after my muga.  She hooked me up with a pharmacy of drugs, I now take 12 pills a day vs the ZERO I was on....Bart bought me a pill organizer this morning, kinda made me feel old. lol 

So off to chemo appt I go....pretty benign.  It's a room full of recliners and tvs, and overworked RNs that can get to the alarm bells quick enough, so many alarms it sounded like a construction site.  The sad part for me, is all of the people in that room that were there.  Cancer affects so many people.  I know each and every one of you are affected.  This is my 3rd encounter with the monster.

I got lots of pre meds for about an hour and then at the 3:25 pm with Dr Phil on the tv on the talk show The Talk....my chemo iv push started. 
The worse thing about yesterday, was I had a killer headache, and I never get them.  But I woke up this morning feeling fine.  Supposely the real and true effects of chemo don't hit you till week 2 of your treatment.

I have a 1230 appt to get a shot to boost my WBC counts, which apparently causes achy bones,  that sounds like a blast!

So I am off my lovely's.  See ya soon

4 comments:

  1. and yet you are still running circles around the rest of us. :-)

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  2. thinking of you often!!

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  3. Sis, we can bedazzle that pill case! I already have ideas. It only makes you feel as old as you let it. You know I have had one for years, and I am young and fantastic! So are you!

    I wish I was there to support you this week and every week, just know when you call...I am there. In spirit, I am always in your heart, mind, and soul. I would have put "body," but that would be gross...you ARE my sister. Just know, if I could trade places with you, I would not hesitate.

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  4. Marsha, I HAVE A NEW WIG. I WILL BRING TO MOONBEAM ON THRUS.PM.SEE IF U LIKE IT . ITS YOURS IF U LIKE IT.
    BLESSINGS
    JULIE

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